Guides I wrote,
sources I trust
Home-grown guides built from everything on this site, followed by outside references from major medical centers and research bodies. Nothing here is invented — the clinical links go straight to the source.
Start with the basicsGuides from this site
Written from lived experience and the material across these pages.
What POTS Actually Is (and What It Isn't)
Why a 30+ bpm standing heart rate increase matters, what the autonomic nervous system is doing, and why POTS is so often mislabeled as anxiety.
6 min read
GuideGetting Diagnosed: A Five-Step Path
Documenting symptoms, ruling out other causes, tilt table vs. active stand testing, screening for related conditions, and building a care team.
7 min read
GuideThe Full Symptom Map
Nine symptom clusters from tachycardia to temperature dysregulation, plus the six triggers that most reliably start a flare.
8 min read
GuideDaily Management That Actually Holds Up
Hydration and sodium targets, compression choices, sleep positioning, meal structure, and pacing to break the push-crash cycle.
9 min read
PersonalMy Symptoms and How I Handle Them
Eight symptoms I live with, written honestly — what each one feels like, and the specific routine I use to get through it.
10 min read
PersonalMy Flare Kit
The short, practical list of what I keep packed and prepped so a bad day doesn't turn into a bad week.
3 min read
Clinical articles & research
Peer-reviewed and hospital-published sources. Bring the clinical review to an appointment if your doctor is unfamiliar with POTS.
Postural Orthostatic Tachycardia Syndrome (POTS)
Plain-language overview of causes, symptoms, testing, and treatment options, reviewed by cardiologists and neurologists.
Cleveland Clinic →
OverviewPostural Tachycardia Syndrome (POTS)
The U.S. National Institute of Neurological Disorders and Stroke summary of POTS, including current research directions.
NIH — NINDS →
OverviewPostural Orthostatic Tachycardia Syndrome (POTS)
Diagnosis criteria, subtypes, and the non-drug and medication approaches used in a major autonomic clinic.
Johns Hopkins Medicine →
ResearchPOTS: State of the Science and Clinical Care (NIH Expert Consensus)
The 2019 NIH expert consensus paper — the closest thing to a definitive reference on what is and isn't known about POTS.
PMC / NIH Consensus Meeting →
ClinicalEvaluating and Managing Postural Tachycardia Syndrome
A clinician-facing review worth bringing to an appointment if your doctor is unfamiliar with POTS workup and management.
Cleveland Clinic Journal of Medicine →
ProgramExercises for Dysautonomia Patients
Recumbent-first reconditioning guidance, including the Modified Dallas / CHOP-style protocols used by many POTS patients.
Dysautonomia International →
Patient organizations
Non-profits with physician directories, research updates, and active patient communities.
Dysautonomia International
Patient advocacy, physician directory, research funding, and annual conferences.
Visit site →The Dysautonomia Project
Education for patients and clinicians, including free provider training material.
Visit site →Standing Up to POTS
Podcasts, research updates, and community programs for POTS patients.
Visit site →Medical Disclaimer
Important: I am not a medical professional, doctor, nurse, or licensed healthcare provider. The information shared on this website is based on my personal experience living with POTS syndrome and is intended for informational and educational purposes only.
I created this resource because I myself struggle with POTS and want to help others who are going through similar challenges. Everything shared here comes from my own journey, research, and what has worked for me personally.
This website does not provide medical advice, diagnosis, or treatment. Always consult with qualified healthcare professionals before making any decisions about your health, treatment, or management of POTS syndrome. What works for one person may not work for another.
If you are experiencing a medical emergency, please call 911 or your local emergency services immediately.